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Using information about people in health research (PDF)
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Details
This guidance applies to all Medical Research Council (MRC) employees and reflects best practice for MRC-funded researchers, for using and sharing health research data about people. It includes:
- principles and summary of relevant law
- identifying participants
- collecting data and consent
- using anonymisation and pseudonyms
- data sharing and publishing
- accessing data
- keeping data safe
- working without consent
- archiving.